Self-reports versus parental perceptions of health-related quality of life among deaf children and adolescents.

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Self-reports versus parental perceptions of health-related quality of life among deaf children and adolescents.

J Deaf Stud Deaf Educ. 2015 Jul;20(3):275-82

Authors: Pardo-Guijarro MJ, Martínez-Andrés M, Notario-Pacheco B, Solera-Martínez M, Sánchez-López M, Martínez-Vizcaíno V

Abstract
The aim of this study was to assess the agreement between deaf children's and adolescents' self-ratings of health-related quality of life (HRQoL) and their parents' proxy reports. This observational cross-sectional study included 114 deaf 8- to 18-years-old students and proxy family members. HRQoL was measured using the KIDSCREEN-27 questionnaire, which was adapted to Spanish sign language for children, with a written version for parents. Respondents completed a self-administered paper questionnaire. Parents' and children's mean scores differences were not significant, except for the "Autonomy and Parents" and "Peers and Social Support" dimensions. Children aged 8-11 years scored higher in some domains of QoL compared to those aged 12-18 years. The level of agreement between children/adolescents' and parents/proxies' responses was acceptable, except for the dimension "Autonomy and Parents." Overall, deaf children/adolescents' self-ratings of HRQoL did not differ from their parents' proxy reports; however, differences were found in the dimensions that explored the quality of the interaction of children/adolescents and parents, the perceived level of autonomy, and social relations and support.

PMID: 25986604 [PubMed - indexed for MEDLINE]

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